April 25-26th 2019, China National Clinical Research Centre for Neurological Diseases (CNCRC_ND), Beijing Tiantan Hospital, Capital Medicine University, successfully hosted Chinese Huntington's Disease Network (CHDN) PI meeting. The CHND was founded by Prof. Jean Marc Burgunder from Switzerland, Professor Shanghuifang of Sichuan University Huaxi Hospital, and Professor Zhong Pei of the first hospital affiliated to Sun Yat-sen University in 2009, and the association has grown to more than 10 triple-A hospitals as its members throughout the country.
At the spring meeting of CHDN in 2019, Professor Jean Marc came to Beijing one day in advance to train the participants in the evaluation of clinical symptoms of HD, so that the students can have experience about the clinical understanding of HD from close observation, and realise the clinical problems of HD patients that are often easy to ignore.
The PI meeting on the morning of 26th was chaired by Professor Huang Yue and Professor Jean Marc. It is divided into two parts: the clinical treatment and basic research progress of HD. In the treatment of HD, Dr. Zhang Jianguo’s team from Beijing Tiantan Hospital, Capital Medical University reviewed the good outcomes of 13 cases with application of DBS in the treatment of HD; Professor Jean Marc reviewed the latest developments in the treatment of HD, and the participants expressed our interest to catch up with the new stage of the development of HD treatment internationally through CHDN. In the basic research session of HD, the teams of Professor Li Yujian of Peking University and Professor Zhong Pei of the first affiliated hospital of Sun Yat-sen University introduced the findings in the animal model of HD. The representative of Quanterix China introduced the latest sample analysis techniques to determine the progression of HD. The 26th afternoon seminar was chaired by Professor Shang Huifang of Huaxi Hospital of Sichuan University and Professor Zhong Pei from the first affiliated hospital of Sun Yat-sen College. Team members of Professor Shang Huifang from Sichuan University Huaxi Hospital, Professor Wu Zhiying from the second house affiliated to Zhejiang University, and Professor Wang Jian from Huashan Hospital, Fudan University in Shanghai introduced the progress of their research on HD, respectively.
The CHDN PI meeting was sponsored by CHDI Foundation in the United States, and Dr. Abhishek Vishnu from CHDI Foundation expressed high expectations for the development of HD research in China.
Hyacinth Care (HD patient group) and CHDN work together to promote the research and care of HD in China, thank you. Hyacinth Care is the only public interest organization in China under the charge of Ms. Cao Xi.
Together with Hyacinth Care, Prof. Huang Yue from China National Clinical Research Centre for Neurological Diseases and Prof. Zhang Jianguo, leader of functional neurosurgery team at Beijing Tiantan Hospital, affiliated to Capital Medical University, jointly organized a doctor-patient exchange seminar in Beijing in 2018.
Beijing Tiantan Hospital, Capital Medical University is the Northern Center of CHDN and it is jointly maintained by Prof. Zhang Jianguo’s team (functional neurosurgery team) from Beijing Tiantan Hospital and Professor Huang Yue’s team (Familial neurological degenerative disease team) at CNCRC_ND.
CNCRC_ND is preparing a longitudinal study through patient registration for patients with neurodegenerative diseases, which has been approved by the Ethical Committee of Beijing Tiantan Hospital, Capital Medical University, and enrol HD on will be the first registration among other neurodegenerative diseases. Enrol HD is a part of global project funded by CHDI, which is intended to establish patient’s medical records, provide the necessary materials and information for clinical research and provide healthcare information and latest advances to patients through long-term follow-up of the enrolled patients. Thus, providing more valuable information to researchers and to those who volunteer to participate in the project for effective health management.
With the help from CHDN and taking the advantage from this successful conclusion of this meeting, Huntington Disease Registration Project run by China National Clinical Research Centre for Neurological Diseases, Beijing Tiantan Hospital, Capital Medical University is about to begin!
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